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Hearing Voices that are Distressing: A Simulated Training Experience and Self-Help StrategiesJust as rehabilitation students gain insight into the experience of physical disability by using wheelchairs, so too can mental health professionals and students experience a simulation of some of the challenges facing people with psychiatric disabilities. Who should attend this training? This training has been developed and piloted for a wide range of people including: inpatient/outpatient psychiatric nurses, psychiatrists, social workers and psychologists; direct care workers in residential, day treatment and psychosocial rehabilitation programs; mental health administrators and policy makers; family members and friends; and academic faculty and students. A modified version of this training emphasizing self help skill building (and no simulation experience) is available for voice hearers who want to learn to control or eliminate distressing voices. Hearing voices that are distressing is a training in which participants use headphones for listening to a specially designed audiotape. During this simulated experience of hearing voices, participants undertake a series of tasks including social interaction in the community, a psychiatric interview, cognitive testing, and an activities group in a mock day treatment program. The simulation experience is followed by a debriefing and discussion period. The workshop also includes:
- A lecture exploring the research and literature on hearing distressing voices
- Presentation of self-help strategies for coping with or eliminating distressing voices
- Practice exercises where participants learn to teach self-help skills to voice hearer
- To empathize more deeply with the challenges voice hearers face
- To reduce the fear and stigma surrounding the voice hearing experience
- To learn to teach self help skills to voice hearers
Call the National Empowerment Center at 1-800-769-3728 for more information
Director/Producer PJ Moynihan Producer Oryx Cohen Executive Producer Gayle R. Berg, PhD
By Claire Bien Paperback 272 pages
By Hanne Arts Paperback 218 pages
By Will Hall Paperback 402 pages
Research studies, articles and book excerpts on recovery. All compiled into one publication!This publication dispels the myth that people labeled with mental illness need to lead lives of endless desperation and broken dreams. Inspire a new generation of consumers, caregivers, administrators, and families!
Electronic version available
By Patricia Deegan, PhD
Self-help strategies for people who hear voices that are distressingThis self-help guide can help you gain control over or eliminate voices that are distressing. The 22 page booklet, includes 18 fully illustrated self-help strategies that can help you take a stand, find your own voice and reach your goals!
Electronic version available
Developed with the assistance of diverse leaders from across the U.S.
Emotional CPR is a public health education program designed to teach people the skills to assist others through emotional crisis and regain a sense of hope and purpose in their lives. This workbook was developed for the eCPR certification training and provides a thoughtful discussion of the values of eCPR, the features of dialogue, and the primary components of eCPR: C = Connection, P = emPowering, and R = Revitalizing. Other sections include how to prepare oneself to provide eCPR as well as tips for self-care. The workbook is filled with inspiring quotes, real-life examples of embodying the practice of eCPR, sample instructions for role plays, and other exercises. The workbook is designed for anyone who may encounter a person in emotional crisis – law enforcement, mental health peers, mental health providers, family members, and others. If you are interested in learning more about eCPR, or would like to request an eCPR training, please visit www.emotional-cpr.org.
By Daniel MacklerHealing Homes, a feature-length documentary film directed by Daniel Mackler, chronicles the work of the Family Care Foundation in Gothenburg, Sweden -- a program which, in this era of multi-drug cocktails and psychiatric diagnoses-for-life, helps people recover from psychosis without medication. The organization, backed by over twenty years of experience, places people who have been failed by traditional psychiatry in host families -- predominately farm families in the Swedish countryside -- as a start for a whole new life journey. Host families are chosen not for any psychiatric expertise, rather, for their compassion, stability, and desire to give back. People live with these families for upwards of a year or two and become an integral part of a functioning family system. Staff members offer clients intensive psychotherapy and provide host families with intensive supervision. The Family Care Foundation eschews the use of diagnosis, works within a framework of striving to help people come safely off psychiatric medication, and provides their services, which operate within the context of Swedish socialized medicine, for free. Healing Homes weaves together interviews with clients, farm families, and staff members to create both a powerful vision of medication-free recovery and an eye-opening critique of the medical model of psychiatry.
Electronic version available
Note: The Hearing Voices Curriculum is now available as a virtual training. For some suggestions on how to conduct this training virtually, click here.
Learn more about the Updated Hearing Voices Curriculum in the video below.
Originally created by Patricia Deegan, PhD with updates by Dr. Dan Fisher and Oryx Cohen
WHAT IS IT?Hearing Voices That Are Distressing is a complete training/curriculum package in which participants use headphones for listening to a specially designed recording. During this simulated experience of hearing voices, participants undertake a series of tasks including social interaction in the community, a psychiatric interview, cognitive testing, and an activities group in a mock day treatment program. The simulation experience is followed by a debriefing and discussion period. The curriculum includes an updated DVD and updated discussion questions that focus on what we can do to support people who hear voices."...The first graduate students who experienced 'Hearing Voices' said it changed their lives. We now require it for all our graduate students in sites across the country." ~ Paul J. Carling, Ph.D. Executive Director The Center for Community Change, Trinity College, Vermont "...The voices simulation gave me a good overview of what people who do hear voices go through on a day to day basis." "...Incredible experience which gave a great insight. " "...Every Officer should have this experience so they can understand what people who hear voices are going through." ~ Law Enforcement Officers from Utah CIT Academies
WHO BENEFITS FROM THIS TRAINING?This curriculum has been developed and piloted for a wide range of mental health professionals including: Inpatient/outpatient psychiatric nurses, psychiatrists, social workers; psychologists; direct care workers in residential, day treatment and psychosocial rehabilitation programs; mental health administrators, policy makers; and police officers, academic faculty and students."...I recently participated in the 'Hearing Voices' training. I must confess, I was disturbed by the sudden realization that I have been treating schizophrenia for four years, yet I have never known what it really was. I may have had the knowledge, but not the wisdom or true empathy -Â until now." ~ Jim Willow, M.D. Psychiatric Resident, PsycHealth Centre, Winnipeg, Manitoba
Sample a sound byte from the hearing voice simulation (mp3, 1843 KB) Please be advised: Contains mild profanities
WHO CREATED IT?Patricia E. Deegan, Ph.D., holds a doctorate in clinical psychology and developed this curriculum as part of her work with the National Empowerment Center. She also publishes and lectures internationally on the topics of recovery and empowerment. Pat is a person with a psychiatric disability, who also has experience hearing voices that are distressing.
By Daniel MacklerIn the far north of Finland, a stone's throw from the Arctic Circle, a group of innovative family therapists converted the area's traditional mental health system, which once boasted some of Europe's poorest outcomes for schizophrenia, into one that now gets the best statistical results in the world for first-break psychosis. They call their approach Open Dialogue. Their principles, though radical in this day and age of multi-drug cocktails and involuntary hospitalizations, are surprisingly simple. They meet clients in crisis immediately and often daily until the crises are resolved. They avoid hospitalization and its consequential stigma, preferring to meet in the homes of those seeking their services. And, perhaps most controversially, they avoid the use of anti-psychotic medication wherever possible. They also work in groups, because they view psychosis as a problem involving relationships. They include in the treatment process the families and social networks of those seeking their help, and their clinicians work in teams, not as isolated, sole practitioners. Additionally, their whole approach values of the voice of everyone in the process, most especially the person directly in crisis. And finally, they provide their services, which operate within the context of Finnish socialized medicine, for free. Open Dialogue weaves together interviews with psychiatrists, psychologists, nurses, and journalists to create both a powerful vision of medication-free recovery and a hard-hitting critique of traditional psychiatry.
By Daniel Mackler In June of 2012, twenty-three people came together to discuss the subject of coming off psychiatric drugs. We were psychiatric survivors, therapists, mental health consumers, family members, and activists, united by a passion for truth-telling. More than half of us had successfully come off psych drugs, including cocktails of antipsychotics and mood stabilizers. What resulted from our three-day gathering was an unforgettable meeting of the minds. This 75-minute documentary (directed by Daniel Mackler) offers a rare glimpse into the world of coming off psych drugs through the eyes of those who have done it. The film presents, among others, Will Hall, author of the world-renowned “Harm Reduction Guide to Coming Off Psychiatric Drugs,” Oryx Cohen, director at the National Empowerment Center, Laura Delano, blogger at www.madinamerica.com, and Daniel Hazen, noted psychiatric survivor and human rights activist. Although this documentary is not medical advice, it intends to offer something even better: hope. In a world where increasing numbers of people are put on psychiatric drugs every day, where more than 20 percent of Americans already take them, and where so many are told they need to stay on them for life, COMING OFF PSYCH DRUGS offers proof that another way is possible.
By National Empowerment Center
Starting Recovery Dialogues in Your CommunityThis DVD focuses specifically on one form of dialogical practice: Recovery Dialogues. In the DVD, you will witness an actual Recovery Dialogue and learn how you can set up Recovery Dialogues in your community.
By National Empowerment Center
A Public Health Education ProgramThis DVD uses a combination of discussion and scenarios taken from real life to illustrate the values and practice of Emotional CPR (eCPR), an exciting and innovative public health education program designed to teach people how to support others through emotional crisis/distress and into recovery.
Printed version of the PACE manual.Also available in PDF format via the home page of NEC website. Available in English, Spanish and Japanese Japanese Translation by: RACA - Recovery Alternative Change Association
Purchase the complete Recovery Series for the combined price of $149.
Includes one each of the following:
- PACE/Recovery Curriculum - $49.00
- PACE/Recovery through Peer Support Curriculum - $69.00
- PACE/Recovery through Peer Providers - $29.00
- PACE/Recovery Reader - $30.00
$177.00 If priced separately
By Amy Long, LPN, Daniel Fisher, MD, PhDRecovery through Peer Providers is an invaluable tool for health care purchasers, managed care organizations, behavioral health care providers, and mental health consumers. Promote recovery by inspiring hope, improving communication, building peer support, highlighting positive role models and sharing coping strategies.
By Daniel Fisher, MD, PhD, Judi Chamberlin
Training for peer coaches, family members and providers."Recovery through Peer Support" is a curriculum for consumers in training to become peer coaches, for consumers wishing to further their own recovery, for family members, and those wanting to assist another person in their development as a whole human being while learning new skills for promoting recovery. The curriculum describes the evolution of peer support by mental health consumers, gives concrete suggestions of ways to facilitate recovery by using the 10 major principles of recovery developed by NEC, and contains interviews with peer coaches describing their experiences. Written by authors with decades of experience in peer support and consumer movement.
By Laurie Ahern, Daniel Fisher, MD PhD
People can and do recover from severe emotional distress known as "mental illness".This curriculum has been developed by Laurie Ahern and Dan Fisher MD, Ph.D. It includes a 34-page guide and a 90-minute video lecture on the PACE (Personal Assistance in Community Existence) curriculum, featuring information on the empowerment model of recovery, PACE/Recovery principles, and recovery research. This information is useful for administrators, consumers, families, advocates, and providers who want to transform their system to one based on a recovery culture.
By Dorothy Dundas Dorothy Dundas, a survivor of forced combined insulin coma/electroshock, psychiatric drugging, seclusion and restraint during her teenage years, has created this powerful poster from her actual hospital records
Electronic version available
By Judi ChamberlinOn Our Own is Judi's story as a patient in both public and private hospitals. The story explores her experiences while being a patient as well as the lessons she learned while using services controlled by the patients themselves. It makes a compelling case for patient controlled services; a real alternative to the institutions that destroy the confident independence of so many. This is a work of great hope and optimism. On Our Own is now translated in to Korean, thanks to Ji-Eun Lee. To download the Korean version, please click here.
Available only electronically
By Daniel Fisher, MD, PhDThe question most often asked of Dan is: "How did you recover?" This electronic booklet includes Dan's personal experience from seclusion to empowerment, and the healing strategies he found helpful. Learn about the values Dan lives by, the strategies he found helpful in healing his "mental illness", and how to connect and harmonize with others.
By Daniel Mackler and Matt Morrissey
Dealing with Your Family After You've Been Diagnosed with a Psychiatric DisorderFamily conflict can wreak havoc on people diagnosed with psychiatric disorders. A Way Out of Madness offers guidance in resolving family conflict and taking control of your life. The book also includes personal accounts of family healing by people who were themselves psychiatrically diagnosed. Contributors include: Patch Adams, M.D., inspiration for Robin Williams film; Joanne Greenberg, author, I Never Promised You a Rose Garden; David Oaks, director, MindFreedom International; Will Hall, co-founder, Freedom Center.
- Click here to read a review of the book
- Sample chapter by Dorothy W. Dundas - Attachments Lost and Found (PDF, 25KB, 9 pages)
- Sample chapter by Will Hall - Life After Family
By Robert WhitakerThe timing of Robert Whitaker's Anatomy of an Epidemic, a comprehensive and highly readable history of psychiatry in the United States, couldn't be better. Salon.com Anatomy of an Epidemic offers some answers, charting controversial ground with mystery-novel pacing. TIME.com Lucid, pointed and important, Anatomy of an Epidemic should be required reading for anyone considering extended use of psychiatric medicine. Whitaker is at the height of his powers. Greg Critser, author of Generation Rx Why are so many more people disabled by mental illness than ever before? Why are those so diagnosed dying 10-25 years earlier than others? In Anatomy of an Epidemic investigative reporter Robert Whitaker cuts through flawed science, greed and outright lies to reveal that the drugs hailed as the cure for mental disorders instead worsen them over the long term. But Whitaker's investigation also offers hope for the future: solid science backs nature's way of healing our mental ills through time and human relationships. Whitaker tenderly interviews children and adults who bear witness to the ravages of mental illness, and testify to their newly found aliveness when freed from the prison of mind-numbing drugs. Daniel Dorman, M.D., Clinical Assistant Professor of Psychiatry, UCLA School of Medicine and author of Dante's Cure: A Journey Out of Madness This is the most alarming book I've read in years. The approach is neither polemical nor ideologically slanted. Relying on medical evidence and historical documentation, Whitaker builds his case like a prosecuting attorney. Carl Elliott, M.D., Ph.D., Professor, Center for Bioethics, University of Minnesota and author of Better than Well: American Medicine Meets the American Dream Anatomy of an Epidemic investigates a profoundly troubling question: do psychiatric medications increase the likelihood that people taking them, far from being helped, are more likely to become chronically ill? In making a compelling case that our current psychotropic drugs are causing as much if not more harm than good, Robert Whitaker reviews the scientific literature thoroughly, demonstrating how much of the evidence is on his side. There is nothing unorthodox here this case is solid and evidence-backed. If psychiatry wants to retain its credibility with the public, it will now have to engage with the scientific argument at the core of this cogently and elegantly written book. David Healy, M.D., Professor of Psychiatry, Cardiff University and author of The Antidepressant Era and Let Them Eat Prozac Anatomy of an Epidemic is a splendidly informed, wonderfully readable corrective to the conventional wisdom about the biological bases and biological cures for mental illness. This is itself a wise and necessary book essential reading for all those who have experienced, or care for those who have experienced, mental illness which means all of us! Robert Whitaker is a reliable, sensible, and persuasive, guide to the paradoxes and complexities of what we know about mental illness, and what we might be able to do to lessen the suffering it brings. Jay Neugeboren, author of Imagining Robert andTransforming Madness Every so often a book comes along that exposes a vast deceit. Robert Whitaker has written that sort of book. Drawing on a prodigious quantity of psychiatric literature as well as heart-rending stories of individual patients, he exposes a deeply disturbing fraud perpetrated by the drug industry and much of modern psychiatry at horrendous human and financial cost to patients, their families, and society as a whole. Scrupulously reported and written in compelling but unemotional style, this book shreds the myth woven around todays psychiatric drugs. Nils Bruzelius, former science editor for the Boston Globe and the Washington Post A devastating critique. . . . One day, we will look back at the way we think about and treat mental illness and wonder if we were all mad. Anatomy of an Epidemic should be required reading for both patients and physicians. Shannon Brownlee, senior research fellow, New America Foundation and author of Overtreated
By Bruce LevinePolls show that the majority of Americans oppose recent US wars and Wall Street bailouts, yet most remain passive and appear resigned to powerlessness. Many Americans have lost confidence that genuine democracy is possible, and Get Up Stand Up explains how major US institutions have created fatalism. When such fatalism and defeatism sets in, truths about economic injustices and lost liberties are not enough to set people free something else is required. For democratic movements to get off the ground, individuals must recover self-respect, and a people must regain collective confidence that they can succeed at eliminating top-down controls. Get Up, Stand Up describes how anti-elitists can unite and recover dignity, confidence, and the energy to wrest power away from the ruling corporate-government partnership (the “corporatocracy”). Get Up, Stand Up details those strategies and tactics that oppressed peoples have successfully employed to gain power. As you read Bruce Levine’s rousing Get Up, Stand Up, inevitably you will be reminded of Thomas Paine’s Common Sense, which served as a rallying cry for the colonialists to take action against their British rulers. Today, Levine argues, Americans are ruled by a tyrannical “corporatocracy” i.e. government by big business and for big business and his analysis of why the American people remain so passive in the face of such tyranny is smart, lucid, and passionate. Readers will also find, in his proposals for how the “people” today can stand up and “do battle” with the corporatocracy, a stirring call for action that surely needs to be heard.” Robert Whitaker, author of Anatomy of an Epidemic and Mad in America
By Katherine Sharpe
A compelling and troubling exploration of a generation raised on antidepressants, and a book that combines expansive interviews with substantive research-based reporting, Coming of Age on Zoloft is a vitally important and immediately engrossing study of one of Americans most pressing and omnipresent issues: our growing reliance on prescription drugs. Katherine Sharpe, the former editor of Seed magazines ScienceBlogs.com, addresses the questions that millions of young men and women are struggling with. Where does my personality end and my prescription begin? Do I have a disease? Can I get better on my own? Combining stout scientific acumen with first-person experience gained through her own struggle with antidepressants, Sharpe leads the reader through a complex subject, a guide towards a clearer future for all.
By Lauren Spiro
A Daughter's Journey From Grief and Madness to Forgiveness and PeaceThis courageously personal memoir describes Lauren Spiroâ€™s journey from unbearable emotional pain following her fatherâ€™s murder, down into psychosis, through the depths of our dysfunctional mental health system, and finally to a place of transcendent healing and peace where she knows that we are all connected much more deeply than we understand. This book has been a way of sharing meaning found in madness and honoring the vision of a sixteen year old that has lead to her lifeâ€™s work. The Dialogues of Discovery book tour is a testament to the power of dialogue to transform consciousness and an invitation to explore topics touched on in the book, such as; How do you redefine who you are? How do you fill the emptiness in your soul? How do you come to know who you were born to be? How do you find liberation for yourself and others? How do you access and trust your own innate wisdom? Ms Spiro is passionate about developing our capacity for compassion, appreciating the vast intelligence and creativity of the human mind, and co-creating pathways so everyone may come home.
Book ReviewsLauren Spiroâ€™s magical book conjures creativity from tragedy, visions from madness, and leadership from despair. I was especially inspired by her courage to challenge racism in the context of a terrible crime. This heartfelt account of Laurenâ€™s life will inspire everyone to reach higher. ~ Will Hall, host of Madness Radio and author of The Harm Reduction Guide to Coming off Psychiatric Drugs
In this moving, beautifully written memoir, Lauren Spiro tells of unfathomable loss, the madness of a psychiatric system that would diagnose her with â€œchronic schizophreniaâ€ at age 16, and her ultimate recovery from both of those childhood traumas. In her poetry and prose, we see too that wordsâ€”the language that can bring us understanding and compassionâ€”can have a healing power of their own. ~ Robert Whitaker, award-winning author, Anatomy of an Epidemic
In vivid prose and poetry, Lauren Spiro has painted for us a picture of her spiritual journey, a journey that took her from unbearable emotional pain, down into psychosis, through the depths of our dysfunctional mental health system, and finally to a place of transcendent healing and peace. This is a story of hope and love, the story of how a daughter, so devastated by her fatherâ€™s senseless murder, was rescued by his cherished spirit awakening in her adult life. The message is clear: healing of the mind and heart is always possible, love needs to be the guiding star in recovery, and we are all connected, much more deeply than we understand.â€ ~ Dr. Mark Foster, Family Physician
A beautiful story of liberation and growth, Living for Two eloquently expresses the path to forgiveness and offers the reader tools and inspiration to get there. Interspersed with dream-like color paintings and poetry, Laurenâ€™s story blends her personal life history with accounts of the larger movement for mental health liberation. A revealing story that will help other survivors of loss and trauma find hope and possibilities. ~ Cassandra Nudel, Editor, Firewalkers: Madness, Beauty & Mystery
Laurenâ€™s story embodies the strength and resiliency of persons who have experienced trauma. With refreshing insight she graciously shares her journey and the tools and resources that have been the wind beneath her wings. ~ Nikki Migas, MPA, Managing Director, CARF International
Lauren takes us on a journey where culture and cosmology enter different doors of the same house. Living for Two is a love story that celebrates the fragility of humankind and the resiliency of one very brave and wise little girl. ~ Cardum S. Harmon, author, Mandala Project: Transfiguration of Ordinary Souls
Lauren Spiroâ€™s Living for Two provides a compelling account of the struggle to map the unfathomable territories that lie at extremes of human experience. Her recovery and transformation after senseless violence, profound loss, spiritual emergency and extreme mental states exemplify hope, resilience and post-traumatic growth. People in recovery, psychology and social work students, helping professionals, children of violence, and others will find this small volume worthwhile. ~ Priscilla Ridgeway, PhD, co-author, Pathways to Recovery
Lauren invites the reader to accompany her through experiences of devastating personal loss and abuse, and being further harmed by the mental health system. Laurenâ€™s creativity, reflected in her prose, poetry, and painting, evoke insight and empathy in the reader. Living for Two takes its place in the literature of personal challenge and recovery, and the ensuing social activism they engender. ~ Jonathan Finkelstein, PhD Associate Dean, University of Maryland, Baltimore County
A powerful story of a young womanâ€™s experiences with trauma and her courage to reclaim a path of recovery and healing. This memoir should be read by all who work in the mental health field. ~ Kevin Ann Huckshorn PhD, RN, State Director, Division of Substance Abuse and Mental Health Services, Delaware
Laurenâ€™s story is as courageous as it is tender in her exploration of how our deepest losses shape the soul, how fear and misunderstanding can too easily silence it, and how love can give our souls voice again, no matter how long they have been silent. Laurenâ€™s memoir invites us to consider whether there is any wound love cannot heal. A question we must answer with our own lives and hearts. ~ Jennifer Maurer, Managing Director, Mother Bear: Families for Mental Health
Powerfully written, this personal journey from loss and sadness to reclamation and healing is soul-redemptive and emotionally stirring. Thank you Lauren for being real, vulnerable, and sharing your story which will ultimately empower others to share theirs. ~ Amikaeyla, Singer / Songwriter / Executive Director, ICAHSI, The International Cultural Arts & Healing Sciences Institute
Electronic version available By Patricia Deegan, PhD
"How does one work with people who are unmotivated"This curriculum, organized into eight modules, will help consumer/survivors/ex-patients, staff, families and friends to provide more effective support and compassionate understanding for those diagnosed with mental illness who appear unmotivated. Roy Starks, Director of Rehabilitation Services at Mental Health Corp. of Denver, Inc. wrote: "Both staff and members found the training materials invaluable. I have worked in the field of Psychiatric Rehabilitation for thirty years and found this training tape to be the most helpful I have ever seen...I recommend this training to anyone working in mental health." Staff of the University of Kansas School of Social Welfare comments:
- "Pat is a powerful myth-buster!"
- "These tapes really challenge and overturn conventional ways of thinking about 'unmotivated' or 'low-functioning' consumers."
- "Pat makes it so clear that their are no cookie cutter approaches, and her emphasis on relationship is so important."
- "These training materials will really be useful in working with staff who are resistant to the role changes that are needed to move the system toward a recovery orientation."
- "There is so much authenticity in this material. It is a grounded and thoughtful presentation of the life experience of real people."
The current-day mental health system has been shaped around the idea that people who have been given psychiatric labels suffer in a way over which they have no control and that often results in an inability to care for ones self. It is an approach that encourages the idea that professionals need to step in to be the experts and determine someone's human potential. These beliefs have also influenced other aspects of our culture to the point where news, movies, friends and family tend to perpetuate the message that we are chronically sick and need to re-adjust our hopes and dreams. In some instances, people have been told they won't be able to handle living on their own, going to school, working, getting married or having children. Many have been told they need to take medications, even if they leave them numb, and participate in programs that treat them as if they are children. The Virtues of Non-Compliance talks back to all those ideas in the voice of people who have been there, who have been told they can't, and who have gone on to live their lives on their own terms.